17th September, 2021
Being informed about the Covid-19 vaccine will help you make the best decision to protect you and your loved ones. For more information visit:...
Huntington’s Victoria (HV) is a not-for profit organisation that was formed by several Huntington’s disease (HD) community members in 1973 to provide a safe, trusted space to receive support. Since this time, it has continued to evolve from a community-run entity into a professionally-run organisation. The community-focused collaborative nature of the organisation, in association with the complex nature of the disease, has inevitably led to Huntington’s Victoria being the first point of contact for those seeking support.read more
21st August, 2020
The annual HV Community Day is being turned into a two day virtual conference this year.
Huntington’s Victoria CEO Tammy Gardner said the COVID-19 pandemic would not stop the expanded event going ahead for the community on Saturday December 5 and December 6.read more
17th July, 2020
New research involving the HD community is set to begin after Huntington’s Victoria secured grant funding from the NDIS Information, Linkages and Capacity Building (ILC) program.
The research will aim to take a closer look at the prevalence of HD as well as the number of people receiving funded support including whether the services available match the needs, expectations and goals of community members.read more
2nd October, 2020
Some of Victoria’s most prominent landmarks will light up in blue in October to raise awareness about Huntington’s disease.
The global Light it Up 4 HD initiative usually takes place in May, but the COVID restrictions in Victoria forced a change in timing.read more
9th September, 2021
Today is R U Ok? Day, and this year probably more than ever it is an important question to ask our friends and family. Checking in with each other can make more of a difference than we realise so if you think you someone may be struggling, start a...
7th September, 2021
We are sad to hear that the Melbourne Star Observation Wheel has closed today. They have been such great supporters of HV and the HD community. For the past 3 years they participated in #lighitup4hd and helped spread the word about HD. Thank you to...
2nd September, 2021
We hope that our focus on genetic testing over the past month has been helpful! To wrap up, we wanted to share this great little overview of genetic testing by the Huntington's Study Group: https://www.youtube.com/watch?v=j1P0Aq3w2ZQ
Huntington’s Victoria is the leading specialist service that supports individuals impacted by Huntington’s disease