A COVID-19 update from Huntington’s Victoria

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Individuals with
have a
50% chance
of passing it on
to their children

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About Us

Huntington’s Victoria (HV) is a not-for profit organisation that was formed by several Huntington’s disease (HD) community members in 1973 to provide a safe, trusted space to receive support. Since this time, it has continued to evolve from a community-run entity into a professionally-run organisation. The community-focused collaborative nature of the organisation, in association with the complex nature of the disease, has inevitably led to Huntington’s Victoria being the first point of contact for those seeking support.

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Meet our Champions

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Raising awareness of HD is vital to increase the attention and resources our community can offer towards supporting people with HD and finding a cure.


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I’m very proud to be recognised for the work I do in the HD community.


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Increasing awareness of HD and it’s devastating impacts on not only those suffering it, but the families of those affected too is one of the first steps to change


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I believe more education and awareness is key to ensuring that people with Huntington’s, and their family, are able to engage with community life.


Your contribution goes directly back to improving the quality of life for those impacted by HD.

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