Huntington’s Victoria (HV) is a not-for profit organisation that was formed by several Huntington’s disease (HD) community members in 1973 to provide a safe, trusted space to receive support. Since this time, it has continued to evolve from a community-run entity into a professionally-run organisation. The community-focused collaborative nature of the organisation, in association with the complex nature of the disease, has inevitably led to Huntington’s Victoria being the first point of contact for those seeking support.
HV is the only specialist service in Victoria that supports and assists people impacted by HD. We aim to improve the quality of life for all people touched by HD in Victoria by connecting families to the vital support and services they need.
Huntington’s Victoria provides access to expert staff that assist in the navigation of the disability service sector, provide relevant information and connect people with respite and support services. We also work with Australian and global healthcare professionals, disability service providers and academics to increase awareness and understanding of HD, as well as the impact it has on individuals, families and communities.
To sustain a high quality of life for people affected by Huntington’s disease, their carers and their family, while encouraging research towards a cure.
All people affected by HD live meaningful and hopeful lives as valued members of the community with equitable and timely access to resources and empowered choices for care and support of the highest quality.
Service Delivery, Information, Advocacy, Research and Sustainability.